The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS.
Until the Foundation was set up, no formal working group had been devoted to MDS. During the past decade we have conducted eight international symposia —in Austria, England, the United States, Spain, Czech Republic, Sweden, France, and Japan. The Ninth International Symposium is being held in May 2007 in Florence, Italy.
A major Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to both physicians and patients.
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